STEP IN aims to address the current unmet need for expertise and resources to provide outstanding care for SMA patients around the world through a comprehensive education program. This is a novel solution that, once developed and implemented in SMA, could also serve as a template for other neuromuscular disorders. Using a rigorous and systematic approach, our competency-based model distinguishes STEP IN from other efforts.
Embedded in a framework of educational expertise, STEP IN seeks to provide a comprehensive resource, which would be suitable for the novice therapist, those developing expertise, as well as suitable for therapists working in the community setting or in a specialist tertiary center, and for those working purely in the clinic or in a research setting or both. The aim is to create a uniform educational program that enables and empowers therapists to deliver appropriate standards of care.